Jr was diagnosed with a rare birth defect called CDH (Congenital Diaphragmatic Hernia). It happens in 1 of every 2,000 babies born and he only had a 30% chance of survival. In his case, he had Left sided CDH, where he had a hole in his diaphragm, causing his stomach/intestines to move up into his chest, pushing his heart to the right side of his body, preventing his right lung to expand. He needed two surgeries at birth to repair his defect, still only leaving him with one working lung. He was finally discharged from the NICU at almost 3 months old.
When he was 5 months old, his was then diagnosed with another defect called Craniosynostosis, where his skull grew together too quickly, caused his head to look kind of like a football. So he had a cranial vault remodeling surgery done at 6 months old where they completely took apart his skull and put it back together so his head looks more round and his brain can grow properly.
He had ear tube surgery in January of 2015 and he also went in 4/20/15 to repair his inguinal hernia (groin hernia) on the right side. While in surgery, they will take a camera and check the left side. If he has a hernia there too, they will repair it during surgery as well.
Jessica, you are truly an amazing mother to Jr. and I'm so happy that he is doing well after so much he's been through. Continue to trust in God's plan for Jr. and your family.
I want to dedicate this shirt to Jr. and to all the little warriors that are fighting to live a normal life.